African Press International (API)

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12-year-old with HIV to open world AIDS conference

Posted by African Press International on August 3, 2008

MEXICO CITY: Keren Dunaway was 5 when her parents used drawings to explain to her that they both had the HIV virus and so didshe.

Now the 12-year-old is one of the most prominent AIDS activists in Latin America and a rarity in a region where few children are willing to break the silence and tell their classmates they have HIV for fear of rejection. She edits a children’s magazine on thevirus.

On Sunday evening, Keren shares the stage with the Mexican president and U.N. Secretary-General Ban Ki-moon as they open an international AIDSconference.

She flashes a dimpled smile, exposing a row of braces, and settles comfortably into her chair before expertly fastening on a microphone. She talks matter-of-factly about the virus she has had sincebirth.

“It’s like a little ball that has little dots, and is inside me, sort of swimming inside me,” she said in an interview with The Associated Press, curling her fist as she recalls what her parents explained to her with drawings longago.

Keren’s openness about her HIV status comes as the virus’s victims grow increasinglyyounger.

Worldwide, people ages 15-24 accounted for 45 percent of people infected with HIV in 2007, according to the 2008 U.N. AIDSreport.

In Latin America, 55,000 of the nearly 2 million people with the virus were under 15 years old, the vast majority of them infected by their mothers. Only 36 percent of pregnant women in the region receive medicine to prevent transmission, although that is an increase of 26 percent since2004.

And while more than 60 percent of the adults with HIV receive antiretroviral drugs in Latin America, only about one-third of children do. Experts say less research and funding has been dedicated to medicine for HIV-positive children, who require smaller doses and additional medication to offset the aggressiveness ofantiretrovirals.

Even so, children born with HIV are increasingly looking forward to longlives.

“There’s a whole new generation of young people that were born with HIV that are reaching adulthood. It presents very interesting challenges,” said Nils Katsberg, UNICEF’S director of Latin America and theCaribbean.

It won’t be easy encouraging HIV-positive children to speak out in Latin America, where talking openly about sexuality is oftentaboo.

When she first started school, Keren’s classmates refused to play with her. Speaking out about HIV made all the difference. At 9, she began accompanying her parents founders of the AIDS advocacy group “Llaves” on talks to schools. She has visited half-a-dozen countries to share herstory.

Last year, she started up “Llavecitas,” a children’s version of a magazine her parents publish. The Llaves foundation distributes 10,000 copies every two months acrossHonduras.

But too often, children with HIV “live in a culture of secrecy,” said Maria Villanueva Medina, a psychologist with Casa de la Sal, a group that runs an orphanage for children with HIV in MexicoCity.

“They can’t talk about their diagnosis in the school because they can be kicked out. They can’t talk about it in their communities with theirneighbors.”

At Casa de la Sal, children are told about the virus around the same age as Keren was, but few dare to tell their schoolmates even where theylive.

Casa de la Sal is adapting to a new reality. When it first opened 22 years ago, many of the children died by the time they reached their teens. Today, the orphanage has not had a death in 10 years. The government providesantiretrovirals.

Faced with the challenge of preparing the children for adulthood, the orphanage eventually began sending them to regular schools instead of giving classes within theinstitution.

The hope is that someday, many will be outspoken advocates for their owncause.

“We need to start getting young people involved in leadership again in HIV and AIDS because it’s easy to get kind of complacent,” said Joe Cristina, whose Los Angeles-based Children Affected by AIDS Foundation helps fund theorphanage.

Keren writes an upbeat editorial each week. (“I want to congratulate all the boys and girls who have graduated and got good grades. Keep it up!!”) She is now popular among herclassmates.

She takes singing and acting lessons, dreams of going to Hollywood and breathlessly notes that she shares the same Zodiac sign Sagittarius and favorite color purple with her teen idol, MileyCyrus.

“Sometimes I have so much fun that I forget I have this” virus, shesaid.

But she often gets e-mails from other children with HIV worried about telling the truth to theirfriends.

“I tell them to first explain about the disease, how its transmitted, how it can’t be transmitted, what it is,” she said. “And then they should tell them with confidence that they have it if theywant.”



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